Association Belge contre les Maladies neuro-Musculaires ASBL
EURORDIS, Europe
SMA Europe
TREAT-NMD, Europe
The French Muscular Dystrophy Association (AFM Telethon)
SMA France
Eclas
Deutsche Muskelstiftung
Associazone Per Lo Studio Delle Atrofie Muscolari Spinali Infantili
The research against SMA, Italy
Unione Italiana lotta alla Distrofia Muscolare, Italy
Famiglie SMA, Italy
Fundación Atrofia Muscular Espinal, Spain
Jennifer Trust for SMA, United Kingdom
The SMA Trust, United Kingdom
Children with SMA (CSMA), Ukraine